I've been in touch with my nurse at TCI and she has been talking with Dr.B. They are now concerned that I may have tethered cord. I had an xray of my lower back and had it sent to Dr.B. He said something looks suspicious there and wants to see me earlier than my appointment in September. I have an appointment on July 20.
If I do have tethered cord, that could be what caused my chiari malformation and will need to be fixed with a surgery on my lower back. There is no test that tells for sure that someone has tethered cord. They go by symptoms and signs from MRIs or XRays of the lower back.
I'm not too keen on having another surgery, especially if the docs can't tell me for sure that I need it or that it will help. I still have a lot to learn and hopefully I get some good information at my appointment on the 20th.