I don't know if I should really call myself 'sick' but I'm not sure what else to call it. I'm not sick with something like the flu, I'm just sick from the Chiari Malformation and everything that goes with it. At this point, I wish I could go back to when I just had head pain. That was before three surgeries! It seems like I've had increased and/or new pain and symptoms after each surgery. I keep thinking that before any of my surgeries, I just had head pain and fatigue. I was able to go work full time and go to school full time in the evenings. Now, I can't even work a part time job. I have trouble even getting together with friends for fun times. I now have head, neck, back, and leg pain that are all constant. The leg pain is new since my last surgery. Its a nerve pain that radiates down my legs. It gets worse as the day goes on and the evenings are sometimes unbearable. I've also had problems with nausea, fatigue, and insomnia; all of which are great fun, let me tell you!
My therapist says that I need to start telling people how I really feel. Yes, I'm seeing a therapist. She is helping me to accept and find ways to deal with the fact that I may have this pain the rest of my life. I do really connect well with her, so hopefully she will be able to help me. I don't usually tell people how bad things really are. I figure they don't really want to know, or I don't want them to worry about me.
So, there it is. I told how I'm really doing. Sorry if I sound like 'Debbie Downer' but this is what its like for me.