Dear family and friends,
As you know, I've been dealing with all the awful effects of something called a Chiari Malformation. It is a neurological condition that causes the bottom part of the brain, or the cerebellum, to descend out of the skull. That puts pressure on the brain and spinal cord, causing pain and neurological problems. I've had three major surgeries since 2005 and I'm significantly worse than I was before any surgeries. The reason for this is that the doctors don't know enough about this rare condition to treat it effectively. This is where we need your help. Conquer Chiari (www.conquerchiari.org), a non-profit organization is raising money for medical research. They are holding a walk on September 20, 2008 for that purpose. I will be walking, along with some family members and friends. I'm asking for your support. If you are interested in sponsoring my walk, you can go to their website and pledge online. If you have any questions about chiari malformations or about Conquer Chiari, please let me know. I will do my best to answer them. I greatly appreciate your time and generosity! Love, Heather
I'm coming to walk!!! Yay!!!